Rare Disease Institute Inc. and its affiliates and properties (“us”, “we”, “our”, or “Company”) respect the privacy of our users. This Privacy Statement will tell you how and what information we may receive about you, and how we may use your information when providing you our tools, products and services. Please read this Privacy Statement carefully.
This Privacy Statement applies to any website that we own and operate, including prognosai and any mobile optimized versions of the site (the “Site”). Except where expressly noted, this Privacy Statement also applies to any mobile device applications or web-based applications owned or operated by us.
Personal Information Collected
In connection with the tools, products and services provided through our Site, some of the information you provide may be personal information (“Personal Information”). Also, some information we receive through such tools, products and services may be non-Personal Information. You are responsible for ensuring the accuracy of the Personal Information you provide to us. Inaccurate information may affect the information you receive when using such tools, products and services.
We may receive Personal Information that you provide to us as follows:
Registration Information: You may share Personal Information with us through newsletters, trade shows, conferences, tools or other services provided by us (and as part of the foregoing). You may share Personal Information when you register on our Site or when you use either or web-based or downloaded application (the “Services”). The information you share with us may be changed by you by notifying us or by following the instructions provided to you by us at registration.
Use of our Services: When you use or interact with our Services, you input Personal Information.
Community Areas, Chats, Postings, Bulletin Boards, Blogs and other User Forums: We may provide an opportunity for users to communicate in community areas, postings, wikis, bulletin boards, chat rooms, blogs and other public and interactive forums on or through our Site (“User Forums”). Any User Forums available are open to the public and should not be considered private.
Interactive Tools: We may offer you interactive content, tools and services. In connection with such items, we may receive information, including Personal Information, which you voluntarily share with us. Some of the tools (like certain quizzes) do not retain your Personal Information, while others (like tools offered through Apps) may store your Personal Information.
Use of Personal Information
We may disclose and use Personal Information to comply with valid legal requirements such as a law, regulation, search warrant, subpoena or court order; or in special cases, such as in response to a physical threat, to prevent or stop actual or potential harm to you, the Company, its users, their property, or defend or assert legal rights.
In addition, we may use Personal Information to provide you the Services requested or agreed by you; communicate with you on the tools, products and services requested or agreed by you (or their terms) and respond to questions you have about the tools, products and services we provide you; help us design and improve our Site and Services, tools, business, products and services to better suit your needs and interests; enable you to participate in features and offers; enforce our policies and procedures, or enforce any other agreement we have with you; help with billing and collection (if applicable) on services and products requested by you; comply with your instructions, authorization or request; and for any other purpose disclosed to you at the time we receive your information or pursuant to your consent.
We may use Personal Information to develop and provide you advertising, marketing and promotions, or information on services, offerings or products that may be of interest to you. You may opt-out from having Personal Information used for this type of communication by contacting us at any time. Please allow for up to 30 days after your election for the opt-out to take effect.
Personal Information may be provided in connection with the foregoing uses to our affiliates, representatives and personnel, contractors who perform functions on our behalf, and certain strategic partners and third parties.
Non-Personal Information Collected
We may collect non-Personal Information as follows:
Cookies and Web Beacons
A designated service provider, or third-party advertisers or their advertising servers may also place or recognize unique cookies on your device or use similar electronic tools in order to display advertisements that you see on our Site. Information about your visits to, and activity on, our Site, an IP address, as well as the number of times you have viewed an advertisement, are used to display on your device screen customized advertisements that may be of particular interest to you. We do not have access to, or control the information collected by, these cookies or similar electronic tools used by these third-party advertisers or their advertising servers. The use and collection of your information by these third-party advertisers and advertising servers is not covered by this Privacy Statement. For information about advertising networks and how to “opt out” of cookies placed by the third parties, please contact the third party companies.
Most browsers are set to accept cookies by default. If you prefer, you can usually set your browser to disable cookies, or to alert you when cookies are being sent. The help function on most browsers contains instructions on how to set your browser to notify you before accepting cookies or to disable cookies entirely. However, it is possible that some parts of this Web site, such as the polls, surveys, contests, product sales, and game areas, will not function properly if you disable cookies.
Third Party Advertisers
Information from Video
We may receive non-Personal Information about your interactions with video content (if any) on this Web site, such as the type of content viewed and information about your interactions with email messages (e.g., links clicked on and whether the messages were opened or forwarded).
Information on Web pages and Links
We may receive non-Personal Information on web pages and advertisements you view from the website and links within the website.
URL, Browser Type, Operating Systems and IP Address
Like many other websites, we may receive non-Personal Information about our users’ utilization, activity and navigation of our website, websites of selected sponsors and advertisers, your browser type, IP protocol and operating system.
Third Party Sources
We may receive non-Personal Information from other sources, such as through vendors and service providers with authorized rights to such information, and from publicly available sources.
Use of Non-Personal Information
The paragraphs described above outline some of our uses of non-Personal Information. We may also use non-Personal Information to help us monitor how many people are using our Site and selected sponsors’ and advertisers’ sites, to provide enhanced functionality on the Site (e.g., user ID and password prompts, navigation aids, and session timers), to help us generate and deliver advertising, marketing and content on web pages or any of our other properties, to monitor certain other Site activity (e.g., user-agent, last URL requested by the user, client-side and server-side clickstream, age restrictions), to monitor how many people open our emails, and for functions related to the foregoing.
We may also use and share non-Personal Information in the same manner as our use of Personal Information described below and in connection with our business (e.g., our third party contractors, agents and representatives may help us utilize cookies and web beacons, and store/handle non-Personal Information).
We are committed to protecting the privacy of children. Neither the Company nor any of our services are designed or intended to attract children under the age of 13. We do not collect Personal Information from any person we actually know is under the age of 13. If we obtain actual knowledge that we have received such information, we will take steps to delete it.
We have in place reasonable commercial standards of technology and operational security to protect all personal information provided by users via the Site from unauthorized access, disclosure, alteration or destruction.
Accessing and Updating Your Personal Information
To access, review, rectify, or delete Personal Information collected about you, please contact us. All requests must include the following information: first name, last name, e-mail address, and known location of Personal Information controlled by us. While we try our best to accommodate your request, we reserve the right to impose certain restrictions and requirements on such access requests, if allowed or required by applicable laws, and not all information is removable.
Links To Third-Party Web Sites
This Privacy Statement only addresses the use and disclosure by our Company of your information. We may provide links to third-party websites. We do not control third-party sites and are not responsible for any information you may provide while on such sites. We are not liable for their use or misuse of your information. You should read the privacy policies on those websites before providing any of your information on such sites.
Legal Notice and Disclaimer
References herein to any product, process or service do not constitute or imply endorsement or recommendation by us, nor does it constitute a formal offer, binding obligation or agreement to provide such product, process or service under any circumstances. While we make every effort to present accurate and reliable information on our Site and other tools, products and services, we do not approve or certify such information nor does it guarantee the accuracy, completeness, efficacy, timeliness or correctness of such information. Use of such information is voluntary and reliance on it should only be undertaken after an independent review of its applicability, accuracy, completeness, efficacy and timeliness with regard to a user’s specific needs and uses. The Company (including its employees and agents) is not responsible for, and expressly disclaims all liability for, damages of any kind arising out of use, reference to or reliance on the information available through its tools, products, and services to which this Privacy Statement is linked or referenced. No approvals, recommendations, endorsements, guarantees or warranties, including, but not limited to, any express or implied warranties of merchantability or fitness for any particular use or purpose of tools, products or services provided by us.
Conditions on Use
For Use Only in the United States
We make no claims regarding access or use of the Site outside of the United States. This Site is intended only for use by individuals within the United States. You agree that any dispute over privacy or the terms contained in this Privacy Statement will be governed by the laws of the State of New York. You also agree to arbitrate such disputes in New York County, New York, and to abide by any limitation on damages contained in any agreement we may have with you.
Questions Regarding This Privacy Statement
If you have questions regarding this Privacy Statement, please contact us at firstname.lastname@example.org or by mail at RDI, 85 Broad Street, 18th Floor, New York, NY 10004
Modifications To This Privacy Statement
We may modify or amend this Privacy Statement from time to time at our discretion. When we make changes to this Privacy Statement, we will amend the revision date at the top of this page and such modified or amended Privacy Statement shall be effective as to you and your information as of that revision date. We encourage you to periodically review this Privacy Statement to view any updates.